Welcome to the Chronic Kidney Disease Insider Newsletter. If you are living with chronic kidney disease (CKD) on dialysis, have had a kidney transplant or are helping care for someone who is, this newsletter was created for you and your family! The content is meant to keep you and/or a family member up to date on the latest information to help you manage your health now and in the near future in consultation with your physician.
In this month’s CKD Insider: AAKP, ASN & Home Dialyzers United updates, Inflation Reduction Act, Penn-CHOP Kidney Innovation Center and your Fun Tip of the Day!
News from Kidney Organizations
HDU Virtual Dialysis at Home Kidney Community Event Thursday, September 15th from 11 a.m. to 5 pm EDT Home Dialyzers United (HDU) created this event so that you can learn from & interact with experts on home dialysis, including advocates, patients, care partners, nephrologists, nurses, device manufacturers, and others who care about helping you navigate your options and get the best care possible for you. Register here for this free event.
AAKP 47th National Patient Meeting Wednesday - Friday, September 21-23rd The American Association of Kidney Patients (AAKP) National Patient meeting will include speakers crossing all sectors of the kidney community including the top influencers in kidney care from Federal government, medical professionals, academia, private industry and non-profit professional organizations in the kidney community; along with a virtual exhibit hall which will allow participates to engage with various kidney-related companies/organizations. Learn more here. AAKP Replays for 4th Annual Global Summit on Kidney Innovations The AAKP “Global Kidney Patient Voice™ virtual event that was held on August 23-24 in partnership with George Washington University included patient experts, government, medical, and industry speakers. All 2022 Global Summit presentations will be available OnDemand through the AAKP website and AAKP YouTube Channel.
ASN Kidney Week Thursday - Sunday, November 3 -6th in Orlando, FL. Early registration September 7th This American Society of Nephrology (ASN) meeting is typically attended by nephrology professionals and students. Discover the latest advancements in nephrology and patient care, listen to provocative discussions between leading experts, present your work, and network with over 10,000 colleagues from across the globe at the largest and most dynamic meeting for kidney professionals. Early registration September 7th here.
KidneyX Artificial Kidney Prize Phase 2 Information Monday, September 12, 2022 Questions and Answers Session "Interested in applying to Phase 2 of the Artificial Kidney Prize? Whether you're developing a complete artificial kidney under Track One or a tool or component under Track Two, we'll be able to answer your questions and provide insight on judging criteria to help you get your application in shape. We ask that you submit your questions here in advance, to allow us to provide the most comprehensive reply (though we will also take questions live during the webinar)." You can join the zoom call on September 12, 2022 at 12pm EST here.
CHOP and Penn launch new Kidney Innovation Center The Children’s Hospital of Philadelphia (CHOP) and Penn Medicine are preparing to launch the Penn-CHOP Kidney Innovation Center. This research center will promote interdisciplinary kidney disease research and bring together both pediatric and adult kidney disease researchers. Scientists in this new center include clinical epidemiologists, biostatisticians, bioinformaticists, computational biologists, geneticists, pathologists, physiologists, biochemists, immunologists, genomicists, pharmacologists, psychologists, and educators all with the goal of “transforming patient care by early detection, prevention and treatment of kidney disease and its complications across the life course.” Learn more here
Bring Good News into your Day! A quick smile or laugh can do wonders for your day! If you are tired of the negative news you hear during the day and want to hear or see some good news, check out the latest good news groups below. If your on social media you can follow these groups to make sure you infuse your day with positive news and real life fun activities that are sure to put a smile on your face! You can also sign up to their newsletters if you don't use social media to make sure you get a regular dose of positivity!
If you are on social media, you can sign up or follow below:
Good News Hub
What it is: Congress recently passed the Inflation Reduction Act of 2022. This bill includes several changes to Medicare that will benefit those with kidney disease. Medicare changes that will impact healthcare costs for those with kidney disea
Limits Part D out-of-pocket prescription drug expenses (capped at $2,000/year)
Allows for healthcare costs to be spread out over the year rather than the bulk of expenses occurring in the first month(s) of the year
Allows Medicare to negotiate drug prices for select drugs
Caps insulin copays to $35 per month
Expands Low-Income Subsidies (LIS) which will now cover all or part of monthly premiums for beneficiaries with incomes between 135-150% of the federal poverty level.
Why it matters to you: The Inflation Reduction Act of 2022 will benefit Medicare beneficiaries with kidney disease by reducing out-of-pocket expenses for prescription drugs, allowing Medicare to negotiate drug pricing, and capping insulin costs to $35 per month. Uncontrolled diabetes can cause or worsen kidney damage, and making insulin more accessible will help prevent kidney disease as a result of unmanaged diabetes. You can read more about the bill in this article from the National Kidney Foundation here.
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